Brooke Eby shares her life with ALS online, but her account is more than a diary
Brooke Eby has built a deeply engaged following by documenting her life with ALS with humor, honesty, and a distinct point of view. Based in the Washington, DC area, Eby shares updates about her diagnosis and daily life, with a tone that balances levity with reality. Across TikTok and Instagram, she...

Brooke Eby has built a deeply engaged following by documenting her life with ALS with humor, honesty, and a distinct point of view. Based in the Washington, DC area, Eby shares updates about her diagnosis and daily life with a tone that balances levity with reality.
Across TikTok and Instagram, she's amassed hundreds of thousands of followers, drawn to her willingness to speak openly about disability, healthcare, and identity. Her posts often mix candid reflections with humor, creating a space that feels both personal and communal.
Eby's platform has continued to grow as conversations around chronic illness and accessibility have gained more visibility online. Her content resonates not just with those directly affected by similar diagnoses, but with a broader audience seeking more honest depictions of life with illness.
That openness has turned her account into more than a personal diary. In the comments, followers share their own experiences, transforming her page into a space for connection and support.
Eby’s presence reflects a broader shift in how people use social media — not just for entertainment, but for understanding.